TRAIN Central Station is the online platform for venture philanthropy in medical research, where foundations that fund research share best practices, exchange ideas, and find relevant tools and resources

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Expanding the Science of Patient Input: Pain Points and Potential

To explore current and future challenges of patient engagement, FasterCures hosted an all-day workshop on Feb. 17, 2016, as part of its Patient Count: The Science of Patient Input program. More than 50 representatives from patient advocacy organizations and other nonprofits, biopharmaceutical and medical device companies, academia and government agencies participated.

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On the Path to a Science of Patient Input

In an April 2016 article published in Science Translational Medicine, FasterCures’ Margaret Anderson, executive director, and K. Kimberly McCleary, managing director, find that momentum is building to incorporate patient preferences into the biomedical R&D system so that products and services better align with patient needs, improve individual and public health and reduce time and spending on unproductive care. 

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Integrating the Patient Perspective into the Development of Value Frameworks

FasterCures has long been engaged in work that strives to bring the patient perspective to the medical research and development process and, in partnership with Avalere, is committed to developing the first value framework that truly includes patient perspectives and addresses individual patient value considerations.