TRAIN Central Station

What's New at TRAIN

Events Events
Save the date for Partnering for Cures, Nov. 3-5 in New York
View archive of Webinar on patient-centered research networks
Case Studies Case Studies
Multiple Myeloma Research Foundation
Myelin Repair Foundation
Tools & Resources Tools and Resources
Inventory of Disease Research Foundations
Honest Brokers for Cures: How Venture Philanthropy Groups are Changing Biomedical Research
Measuring and Improving Impact: A Toolkit for Nonprofit Funders of Medical Research
Current News
The Burrill Report: New Initiative Takes on Multiple Sclerosis with Big Data

Innovator Spotlight

CTF2
Q&A with Pat Furlong, Founding President and CEO

Train Inventory


Interest within industry and academia in engaging the nonprofit disease research foundation community, particularly those with a venture philanthropy focus, is at an all-time high, but awareness of the landscape of players and how to approach them is limited. Previously, no resource existed that cataloged the operational and partnering practices of these organizations.

To help address this gap, FasterCures developed The Research Acceleration and Innovation Network (TRAIN) Inventory, a free public, Web-based resource. All information included in this inventory comes from publicly available sources.

Some highlights:
  • This first-of-its-kind inventory was designed to help potential collaborators better understand the landscape of nonprofit disease research foundations and engage in meaningful partnerships with them. Using a set of common metrics, it highlights key details about each organization's research portfolio, collaboration efforts, and financials.
  • It profiles 55 organizations in FasterCures' TRAIN program. In all, these groups provide more than half a billion dollars in medical research grants in a year, and are worth more than $2.2 billion.
  • One in three TRAIN groups have supported at least one clinical trial. One in two incorporate advocacy efforts into their efforts for fighting disease. Nearly 9 out of 10 groups partner with biotechnology and pharmaceutical companies.
We hope this resource will be of value to individuals hoping to better understand the landscape of nonprofit disease research foundation players and to engage in meaningful partnerships with them.

statistics about TRAIN organizations

Click on the organization name to download the full profile in PDF format (get the reader).

 
Funds Medical Research Grants
Partners with Biotech and Pharma
Implements
Advocacy Efforts
Accelerate Brain Cancer Cure Biotech and Pharma partners  
Accelerated Cure Project for Multiple Sclerosis   Biotech and Pharma partners  
Adenoid Cystic Carcinoma Research Foundation Funds Medical Research Grants Biotech and Pharma partners Implements Advocacy Efforts
Alliance for Aging Research     Implements Advocacy Efforts
Alpha-1 Foundation Funds Medical Research Grants Biotech and Pharma partners Implements Advocacy Efforts
ALS Therapy Development Institute    
Alzheimer's Association Funds Medical Research Grants Biotech and Pharma partners Implements Advocacy Efforts
Alzheimer's Drug Discovery Foundation Funds Medical Research Grants Biotech and Pharma partners Implements Advocacy Efforts
Autism Speaks Funds Medical Research Grants Biotech and Pharma partners Implements Advocacy Efforts
Ben & Catherine Ivy Foundation check mark  
Bonnie J. Addario Lung Cancer Foundation and Addario Lung Cancer Medical Institute checkmark  
Cancer Research Institute checkmark  
CFIDS Association of America checkmark Implements Advocacy Efforts
Charley's Fund Funds Medical Research Grants  
Children's Tumor Foundation Funds Medical Research Grants Biotech and Pharma partners Implements Advocacy Efforts
Chordoma Foundation check mark Biotech and Pharma partners  
Citizens United for Research in Epilepsy check mark   Implements Advocacy Efforts
Cure Alzheimer's Fund check mark Implements Advocacy Efforts
CureDuchenne check mark Implements Advocacy Efforts
Cystic Fibrosis Foundation check mark Implements Advocacy Efforts
Damon Runyon Cancer Research Foundation check mark  
Dr. Susan Love Research Foundation check mark    
Epilepsy Therapy Project check mark  
Focused Ultrasound Surgery Foundation check mark Implements Advocacy Efforts
Foundation Fighting Blindness check mark  
Hide and Seek Foundation check mark    
Hydrocephalus Association check mark   Implements Advocacy Efforts
International AIDS Vaccine Initiative check mark Implements Advocacy Efforts
International Mental Health Research Organization check mark  
JDRF check mark Implements Advocacy Efforts
Leukemia & Lymphoma Society check mark Implements Advocacy Efforts
Life Raft Group check mark  
Lymphoma Research Foundation check mark Implements Advocacy Efforts
Melanoma Research Alliance check mark  
Michael J. Fox Foundation for Parkinson's Research check mark Implements Advocacy Efforts
MPN Research Foundation check mark  
Multiple Myeloma Research Foundation check mark Implements Advocacy Efforts
Muscular Dystrophy Association and MDA Venture Philanthropy, Inc. check mark Implements Advocacy Efforts
Myelin Repair Foundation check mark  
Nathaniel Adamczyk Foundation check mark    
National MS Society and Fast Forward check mark Implements Advocacy Efforts
New York Stem Cell Foundation check mark Implements Advocacy Efforts
Nicholas Conor Institute for Pediatric Cancer Research    
One Mind For Research   Implements Advocacy Efforts
One World Health check mark  
Pancreatic Cancer Action Network check mark Implements Advocacy Efforts
Parent Project Muscular Dystrophy check mark Implements Advocacy Efforts
Parkinson's Action Network     Implements Advocacy Efforts
Progeria Research Foundation check mark Implements Advocacy Efforts
Prostate Cancer Foundation check mark Implements Advocacy Efforts
Rett Syndrome Research Trust check mark  
Susan G. Komen for the Cure check mark Implements Advocacy Efforts
Translational Genomics Research Institute    
Tuberous Sclerosis Alliance check mark Implements Advocacy Efforts
VascularCures check mark    
FasterCures is licensed under a Creative Commons Attribution 3.0 United States License.
TRAIN (The Research Acceleration and Innovation Network) is a program of FasterCures.

www.fastercures.org