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The Hill: Patient advocacy key to finding new treatments for rare diseases
02/29/2016

Hundreds of Americans will converge on Capitol Hill Wednesday (March 2) to lobby for legislation that would make it easier to identify, develop and approve drugs for life-threatening rare diseases and pediatric cancers. The legislative push is part of a weeklong series of events that begins today (Feb. 29) with Rare Disease Day, established in 2008 to raise public awareness of rare diseases and their impact on patients and families.