TRAIN E-News

May 2017

FasterCures Receives PCORI Award to Implement User-centered Design Health Data Tool »

CURE Partners with LSG Foundation on Epilepsy Genetics Initiative »

Unpaywall Searches the Internet for Free Versions of Scientific Articles »

March 2017

Save the date: Partnering for Cures is going on the road »

Margaret Anderson says it’s time for a “health citizenship” movement in Science Translational Medicine »

The Alpha-1 Foundation remembers John Walsh »

FDA considers creating new 'Office of Patient Affairs' »

January 2017

Improve your Patient-centered Activities Using the Patients Count Resource Library »

Top Ten Medical Research Issues and Trends to Watch in 2017 »

Sean Parker’s Institute Teams up with CRI for Cancer Neoantigens R&D Deal »

NHLBI Seeks Input on Translational Research by Feb. 17 »

November 2016

Patients Count Network: A searchable digital directory of patient foundations »

It’s not too late to attend Partnering for Cures »

Nonprofits, pharmaceutical companies and clinicians join to launch the Collaborative Trajectory Analysis Project »

Keeping researchers accountable for clinical trial results »

July 2016

Watch Webinar Archives on Value Assessments and Cancer Moonshot »

Rx for Innovation: Share Your Recommendations for the New Administration »

ArmaGen and RSRT Collaborate on New Treatment of Rett Syndrome »

Single IRB Policy to Streamline Reviews of Multi-Site Research »

June 2016

Pain Points and Potential »

On the Path to a Science of Patient Input »

Melanoma Research Alliance Names Michael Kaplan as New President and CEO »

Tech Takes Hold in Clinical Research, but Obstacles Remain »

April 2016

Learn How to Build Smarter Patient Registries »

Workshop Brings Together Experts on Patient Engagement »

MJFF and PAN to Merge Policy Initiatives »

Launching a New Natural History Grants Program: Building a Solid Foundation for Rare Disease Treatments »

January 2016

Become a Member of TRAIN »

Patients will Continue to Shake up Medical Research This Year »

BIO Partners with PPMD on Patient Profiles »

ARM's Rare Disease Roundtable to be Held Jan. 27 in Washington »

November 2015

Become a member of TRAIN »

Register for Dec. 2 Webinar on university-foundation relations » »

Google and AHA to fund $50 million coronary disease study »

Comment by Nov. 20 on FDA's Patient Engagement Advisory Committee »

September 2015

Check out TRAIN's Management and Accountability resources »

FasterCures releases summary of "Partnering with Patients on Value, Coverage, and Reimbursement" workshop »

Foundations join forces on melanoma study »

Registration now open for Sept.15 MDUFA meeting »

August 2015

Innovator Spotlight on Cure SMA »

Brand-new format to debut at Partnering for Cures »

NPF launches patient-centered research platform »

FDA encourages patient-focused drug-development meetings »

July 2015

Innovator Spotlight on National Psoriasis Foundation »

Blog Series Highlights Issues from FasterCures' Value and Coverage Workshop »

Myelin Repair Foundation Is Closing its Doors »

ASCO Solicits Comments on Value Framework through Aug. 21 »

June 2015

View Archive of Webinar on Patient Registries »

Science Translational Medicine Article Focuses on Expanding Role of Patients »

CCFA Launches Development of Research Database »

Helmsley Type 1 Diabetes Data Innovation Announces Request for Proposals »

May 2015

Venture philanthropy gains steam, pushes promising science through to patients »

View summaries and videos of Global Conference sessions on medical research »

BBDF works across diseases to address common drug target »

Comments due May 17 on sustaining NIH investment »

April 2015

Visit the new TRAIN Central Station »

Register for April 7 Webinar on FDA's Patient-Focused Drug Development initiative »

PPMD's benefit-risk project cited as effective example of patient engagement »

Apr. 21 Bio-IT World workshop to examine patient-facing data networks »

March 2015

Register for March 12 Webinar on venture philanthropy deal-making »

FasterCures responds to Senators' innovation report »

ADDF teams up with Pfizer CTI to support discovery of drugs for Alzheimer's disease »

Study shows how NCATS projects aided drug development »

February 2015

Innovator Spotlight on Alzheimer's Drug Discovery Foundation »

Anderson responds to New York Times op-ed on venture philanthropy »

MJFF grantee receives investment to push therapy into clinical testing »

IOM issues guidelines for sharing clinical trial data »

January 2015

Register for Webinar on '2015 policy landscape: A biomedical R&D planning guide' »

FasterCures urges FDA to realize promise of patient participation »

NYSCF and CMTA collaborate to advance research for neuropathies »

New drug approvals in United States highest in 18 years »

December 2014

Innovator Spotlight on The Nicholas Conor Institute »

P4C: You don't have to miss a minute! »

CFF sale of royalty rights supports its venture philanthropy model »

Apply by Dec. 10 to be a CTTI Patient/Caregiver Representative »

November 2014

Innovator Spotlight on Charley's Fund »

3 things that will make P4C your most productive 3 days of the year »

Foundation Fighting Blindness joins forces with Harrington Discovery Institute to speed drug development »

FDA seeks patient input on 16 medical conditions by Dec. 5 »

October 2014

Innovator Spotlight on Vascular Cures »

P4C Innovator Presentations announced »

CMTA to co-develop therapeutics with Genzyme »

CHDI Foundation seeks controller »