Collaboration
Given the complexity of science and the research process, collaboration among researchers, disciplines, and sectors is critical to successful innovation in disease research, and patient-driven foundations can serve as an ideal nexus for convening and coordinating efforts. Find information here about engaging and nurturing relationships with a wide range of partners that can accelerate the overall funding and research cycle.
Featured Items
Tools you can use
CHDI agreement templates
Source: CHDI
Patient Group Organizational Expertise & Assets Evaluation Tool
Source: Clinical Trials Transformation Initiative
Chordoma Foundation grant award letter
Source: Chordoma Foundation
Foundation agreement with biotechnology/pharmaceutical company
Source: Schaner and Lubitz, PLLC
Mutual non-disclosure agreement
Source: Schaner and Lubitz, PLLC
Confidential Disclosure Agreement for research consortium
Source: Michael J. Fox Foundation for Parkinson's Research
Consortium master collaboration agreement
Source: Addario Lung Cancer Medical Institute
Lambert Toolkit for Collaborative Research
Source: Intellectual Property Office, United Kingdom
Research Funders Addendum
Source: Science Commons
Prize announcement for new chordoma cell lines
Source: Chordoma Foundation
NCATS Collaboration Agreement
Source: National Center for Advancing Translational Sciences
Biomarkers Consortium IP and data-sharing principles
Source: The Biomarkers Consortium
NIH Transfer Agreement Dashboard
Source: National Institutes of Health
National Venture Capital Association model legal documents
Source: National Venture Capital Association
NIH agreement templates
Source: National Institutes of Health
Company-nonprofit material transfer agreement
Source: Karyopharm, Inc.
Chordoma Foundation biobank partner site agreement template
Source: Chordoma Foundation
Memorandum of Understanding for The Learning Collaborative
Source: National Center for Advancing Translational Sciences
Research consortium member agreement
Source: Myelin Repair Foundation
Publications & Events
Fostering collaborative research for rare genetic disease: the example of niemann-pick type C disease
Source: Orphanet Journal of Rare Diseases
An essential partnership: A guide for charities working with industry
Source: Association of Medical Research Charities
University-foundation relations: From transactional to transformative partnerships
Source: FasterCures
Consortia-pedia: An in-depth look at the research-by-consortium trend in medical R&D
Source: FasterCures
NCATS technology transfer: Best practices
Source: National Center for Advancing Translational Sciences
CTSA Consortium Coordinating Center: Supporting the CTSA Consortium
Source: Clinical and Translational Science Awards Consortium
The Learning Collaborative: What have we learned? What will be important?
Source: University of Kansas
Partnership continuum: Pathways for beneficial university-industry engagement
Source: University-Industry Demonstration Partnership
Researcher guidebook: A guide for successful institutional-industrial collaborations
Source: University-Industry Demonstration Partnership
Facilitating research collaborations: Using the "right" agreement terms
Source: National Institutes of Health
