Read the monthly TRAIN newsletter to stay abreast of innovative ways foundations are accelerating the R&D process and new resources that can make organizations more effective. Here are headlines from the most recent issue:
Patient advocacy key to finding new treatments for rare diseases
Hundreds of Americans will converge on Capitol Hill Wednesday (March 2) to lobby for legislation that would make it easier to identify, develop and approve drugs for life-threatening rare diseases and pediatric cancers. The legislative push is part of a weeklong series of events that begins today (Feb. 29) with Rare Disease Day, established in 2008 to raise public awareness of rare diseases and their impact on patients and families.